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Diagnosed with MAC but not being treated
MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (100)Comment receiving replies
@suzyqueue, @windwalker Suzy, I love your determination! We can do this!
Easy for me to say, I’m not on the Big 3 or Amikacin yet - I have colonized MAC in my lungs and abscessus in my sinuses...if I get 1 more sputum sample back positive for abscessus in my lungs & am symptomatic, then I’ll probably have to start the “Big” treatment. 🙏
I see advertisements for the “So Clean” CPAP Sterilizing device, and I’m curious if we could throw our nebulizer equipment & sinus cleaning equipment in something like that to save some time as well as get a better level of sterilization?
Replies to "@suzyqueue, @windwalker Suzy, I love your determination! We can do this! Easy for me to say,..."
I was wondering the same thing.
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@brigby
@suzyqueue
I got the idea from someone on this forum that I have been using to sterilize my nebulizers its a baby bottle sterilizer. I purchased mine off Amazon It was pretty cheap under 50.00. It works well and quick 15 minutes and I know that the equipment is sterile.
I have about 6 nebulizer and at store them in soapy water until the end of the week then rinse and throw in the sterilizer.
Shari