← Return to Diagnosed with MAC but not being treated

Discussion

Diagnosed with MAC but not being treated

MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (100)
Comment receiving replies
@suzyqueue

@brigby - Only if I could fit in gym time in the morning....oh and the energy LOL! I usually go to the gym after work around 5:30 or 6:00 and weekend afternoons. This really does require everything you said. I remember my doctor saying that the nebulizing is just "a pain in the butt" and I thought "how big of a deal can it be"? LOL! One I got into routine it wasn't so bad. Adding the Amikacin treatments to my day and all that has to be done with sterilization etc with it is another story....again - once in routine not so bad.

Jump to this post

Replies to "@brigby - Only if I could fit in gym time in the morning....oh and the energy..."
Brenda R. | @brigby | Feb 20, 2019

@suzyqueue, @windwalker Suzy, I love your determination! We can do this!

Easy for me to say, I’m not on the Big 3 or Amikacin yet - I have colonized MAC in my lungs and abscessus in my sinuses...if I get 1 more sputum sample back positive for abscessus in my lungs & am symptomatic, then I’ll probably have to start the “Big” treatment. 🙏

I see advertisements for the “So Clean” CPAP Sterilizing device, and I’m curious if we could throw our nebulizer equipment & sinus cleaning equipment in something like that to save some time as well as get a better level of sterilization?

VIEW AND REPLY