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Diagnosed with MAC but not being treated

MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (100)

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@ginak

@heathert My first pulmonologist never gave any reason for it when I asked. I guess she didn’t really know. Before I was diagnosed in 2016, (after the lung surgery to biopsy a large nodule), that specialist said nodules are caused by aspiration from acid reflux. Due to the inflammation acid reflux causes. The pulmonary Dr I have now said the nodules MAY be caused by the MAC MAI. I really believe none of them know exactly, or maybe it’s all of the above. I have a friend who said they saw nodules in her lungs on CT scan but she was never diagnosed with any NTM, although she does have acid reflux also. I guess the NTMs are because of the bronchiectasis, which she doesn’t have. I hope someday they figure it all out so we can know exactly how we should be treated.

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Replies to "@heathert My first pulmonologist never gave any reason for it when I asked. I guess she..."

@ginak My dr says the same thing, doesnt really know but could be MAC MAI.My next scan is in a few weeks, will they have gone, who knows.