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deborahwolf avatar

Diagnosed with MAC but not being treated

MAC & Bronchiectasis | Last Active: Aug 11 9:55am | Replies (115)

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Profile picture for ginak @ginak

@deborahwolf I’ve had the same experience. I was diagnosed 2016. No medication for me either. My pulmonary Dr was a little concerned this past October because I had developed a 1.5 cm nodule since last year and mentioned antibiotics as a consideration. but we decided to wait until another CT scan 3 months later. That showed the nodule had reduced in size. So since I still have same mild symptoms you mentioned, still no meds. I do lung clearance exercises with the Aerobika twice a day, (for the Bronchiectasis), and I nebulize .9 % and 3% saline alternately, for the MAI/MAC.
Gina

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Replies to "@deborahwolf I’ve had the same experience. I was diagnosed 2016. No medication for me either. My..."

@ginak what are the clearance exercises you do twice a day? You say Aerobika. Do you also nebulize? I found the 3% too strong. I'm going to request a smaller amount