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Diagnosed with MAC but not being treated

MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (100)

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@janovr

@alleycatkate I was treated too soon by a local doctor using 1 sputum test. Unfortunately, I did not get a second opinion and started on the meds. I was so ghastly nauseated from the meds, lost 40 pounds in 3 months. Changed doctors.... no meds, watch for signs.
3 years later still fine, moved to another state. New doctor believes in the same approach.
YAY 2 opinions!

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Replies to "@alleycatkate I was treated too soon by a local doctor using 1 sputum test. Unfortunately, I..."

@janovr I believe locale has a lot to do with how sick people become with mac and pseudomonas. Whenever I am in the state of Virginia for too long, I get re-infected with either mac or pseudomonas. 'Too long' for me in that state is like three months. Now, I take shorter visits up there. I wouldn't go at all except that ALL of my family is there, including my one and only daughter. I believe it could be due to the dampness there. That makes for more molds and god knows what under the rotting leaves. I now live in South Carolina near the shore. The ground is dry 20 minutes after it rains because it drains quickly through the sandy soil. I have done so much better health wise since I moved here. (that, and going to Mayo Clinic).