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Diagnosed with MAC but not being treated
MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (100)Comment receiving replies
@deborahwolf I went to Mayo for a second opinion and got the same response. I think for now we can consider ourselves very fortunate. The first opinion from a local pulmonologist was basically the same but with no information or suggestions for improving my lung condition (nebulizing saline and lung clearance with an acapella device). I think it is always a good idea to get a second opinion, if for just the peace of mind. I was also told to Follow up yearly with an exray and sputum and to keep antibiotics on hand in case of a flare up (but not to use any of the big 3) Best wishes,
Kate
Replies to "@deborahwolf I went to Mayo for a second opinion and got the same response. I think..."
@migizii I am also treated at Mayo and received the same recommendations following sputum test results except he wants me to do respiratory hygiene program twice daily instead of one time a day with 6-9 month follow up.
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@alleycatkate I do consider myself fortunate to not be on medication. I did see an infectious disease doctor who recommended treatment but didn’t push when I expressed my concern about the medications and preference to take a watch and wait approach. Hopefully it is the right call.
I did not receive any information or recommendations for lung clearance.