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GI Disorder and Internal Shaking

Digestive Health | Last Active: Oct 7 8:39pm | Replies (372)

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@rjk

Hi all-
Regarding the internal shaking, found a similar support site for neuropathy where many people complain of internal vibrating at night which may be "small fiber neuropothy" (SFN), a nerve disorder. These fibers small fibers (in your skin?) help you feel pain and thermal sensations plus help regulate your heart rate and digestion. Hard to diagnose, requires a skin biopsy. Online reading says that SFN is a symptom, the cure it is to find the cause-diabetes, pre-diabetes, Celiac, Lymes. others? I now have read about Neuronopathy or non-length dependent small fiber neuropathy which may be a closer fit to me (?). Caused by "autoimmune, nutritional, and toxic conditions...the nerve tips farthest from the seat of circulation would be more vulnerable to metabolic disruptions, simply because oxygen/nutrients have to travel more to get there, and more effort is needed to get rid of waste buildup." (not sure where I found this info). So for you, as well as for me, an unhealthy liver is involved (waste removal). I have Celiac (autoimmune), have nutritional deficiencies (because of Celiac) and all this started when I was exposed to industrial demolition dust during construction at work (toxic?). During my joy ride, I was also diagnosed with sleep apnea and after getting my CPAP, found vibrations left for about 2 months (getting more oxygen?). I may be way off base, just really trying to connect the dots to get rid of this horrible vibrating. Been suffering for 5 years.

For liver issues, lymphatic support helped me somewhat. Google "dry brushing", try rebounding/jumping on mini trampoline, exercise, soak in a tub with epsom salts. The lymphatic system is your internal garbage disposal systen so anything to get that moving may help (?).

For those of you with gastro/constipation issues, have you been tested for small intestinal bacterial overgrowth (SIBO)? Fairly common. Gastro doc can give you a breath test.

Best of luck!

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Replies to "Hi all- Regarding the internal shaking, found a similar support site for neuropathy where many people..."

Wow @rjk this is really helpful! Just read your post from October 15th as well and the news about the diet is heartening, especially with such intense symptoms. I should try that out and see what happens. Just to reiterate for everyone---my heart is normal and I don't particularly get palpitations anymore. I've started moving around & getting more physical activity in. But the internal vibrations and finger twitching (which I posted about in another group) are still very much there. Parasthesia in my arms showed up again a few times in December, making it hard for me to sleep.

Just last week, I was barely able to sleep because I had internal vibrations all over my body....usually they have just been confined to my fingers. I was able to sleep just fine last night without them bothering me so I suspect it may have something to do with my period, last week, and the gas build-up that usually comes with that. The SFN sounds very plausible though. Literally all my problems seem to connect to my gut health, just like yours. I got a second blood test that tested my liver last week and will be seeing the results tomorrow---will update if it's abnormal.

Will look into SIBO!

(Just FYI---I'm trying to share as much information about my condition as I can so that people suffering similarly can see what matches. Sorry if anything is TMI)