Hello everyone. I see this post has been quiet for several months, and I'm going to try to revive it, because I find myself at the place some of you were at 6 months to a year ago.
My diagnosis for now is IBS-C and non-alcoholic day liver, with asymptomatic (minor) gastritis. Like most people in this thread, my doctors have found nothing to cause my symptoms. Abdominal ultrasound found my fatty liver, upper GI scope found my gastritis. Otherwise, my upper GI scope and colonoscopy were perfectly clear.
I've had blood work done three times in the last year. My nurse practitioner ordered a full spectrum of tests in November 2019. She said she wishes her healthy patients blood results were as perfect as mine. So, I still have no answers.
I am hopeful that someone In this thread has received a diagnosis that makes some sense. The internal vibrations started in November 2019, and were sporadic...I'd have them for a few days and then they'd go away for a couple weeks. Currently I have had them for over a week, with no indication of them stopping this time. They mainly come at night (I'm posting this at 4:45am after waking up at 3am).
i hope everyone finds relief from their symptoms.
Take care everyone.
@gigiraj I PMed you as well.
Hi all-
Regarding the internal shaking, found a similar support site for neuropathy where many people complain of internal vibrating at night which may be "small fiber neuropothy" (SFN), a nerve disorder. These fibers small fibers (in your skin?) help you feel pain and thermal sensations plus help regulate your heart rate and digestion. Hard to diagnose, requires a skin biopsy. Online reading says that SFN is a symptom, the cure it is to find the cause-diabetes, pre-diabetes, Celiac, Lymes. others? I now have read about Neuronopathy or non-length dependent small fiber neuropathy which may be a closer fit to me (?). Caused by "autoimmune, nutritional, and toxic conditions...the nerve tips farthest from the seat of circulation would be more vulnerable to metabolic disruptions, simply because oxygen/nutrients have to travel more to get there, and more effort is needed to get rid of waste buildup." (not sure where I found this info). So for you, as well as for me, an unhealthy liver is involved (waste removal). I have Celiac (autoimmune), have nutritional deficiencies (because of Celiac) and all this started when I was exposed to industrial demolition dust during construction at work (toxic?). During my joy ride, I was also diagnosed with sleep apnea and after getting my CPAP, found vibrations left for about 2 months (getting more oxygen?). I may be way off base, just really trying to connect the dots to get rid of this horrible vibrating. Been suffering for 5 years.
For liver issues, lymphatic support helped me somewhat. Google "dry brushing", try rebounding/jumping on mini trampoline, exercise, soak in a tub with epsom salts. The lymphatic system is your internal garbage disposal systen so anything to get that moving may help (?).
For those of you with gastro/constipation issues, have you been tested for small intestinal bacterial overgrowth (SIBO)? Fairly common. Gastro doc can give you a breath test.
Best of luck!