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GI Disorder and Internal Shaking

Digestive Health | Last Active: Nov 18 7:58am | Replies (373)

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@highd

Hello,
Has anyone found anything or had any diagnosis from these symptoms?? If you have, please let me know. I’m 46 and desperate.. been having these same symptoms for over 9months now. And i would add a lump feeling in my throat. I’ve been 5 times at hospital er and 6 times at walk in clinics (i live in Quebec, Canada and dont have a family doctor, she retired and am on a waiting list that is very long for a family doctor) I’ve quit smoking in March thinking it would help. But it got worse. Cleaned my diet. Plus visits and treatments to Osteopath, acupuncture and chiropractic. After 6 months of trying to get better i’m still feeling awful and the pains are just getting worst. I’ve been told that it’s anxiety, my nervous system, hypochondria, migraines, IBS ...Not to mention the numerous test, head CT, abdomen, barium swallow, ENT, spine MRI, ultrasound of abdomen, thyroid, pulmonary embolism blood test, chest x ray, basic CBC blood test that always came back clear. The only thing i found out a couple weeks ago, is when i tracked my symptoms and the internal shaking seizures relieved by gas, (neurological disease??MS??)they happen a few days before my period and other symptoms shortness of breath, severe upper stomach pains like burning and twisting, throat tightness, jaw and left arm numbness, left side whole body pains, left sciatica (my knee becomes numb cant walk for long) happens between 8 to 11 days after first day of period, around ovulation. Only one doctor mentioned endometriosis??? Im seeing a gynecologist in a few days. They all say its not life threatening but its threatening my sanity and life as i cant continue feeling invalidated. Doctors think i make no sens cause of too many symptoms. I just want to find out what’s wrong with my body. Please help thank you!

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Replies to "Hello, Has anyone found anything or had any diagnosis from these symptoms?? If you have, please..."

Oh my gosh, I'm so sorry you're going thru all of this and that those doctors have been so invalidating!!! I know that feeling of everything coming back normal.
I'm also experiencing the internal shaking that's relieved by gas/bowel movements and am wondering if it's MS/Young-Onset Parkinsons (I posted a similar query here which got some helpful responses: https://connect.mayoclinic.org/discussion/finger-twitching/). I haven't exactly experienced your other symptoms but similar--parasthesia in my arms when lying down, muscle twitching, feeling of something stuck in my throat. The internal shaking is the main thing. I'm curious about the stuck-in-throat feeling and the possibility that it might be linked since you're experiencing it too.
I'm seeing a neurologist in a month and getting an MRI tomorrow and will update you as soon as I can.

I'm NOT a doctor but I've read that Vitamin B-12 deficiency exhibits similar symptoms and was thinking of getting tested for that. Just tossing that idea out there. Hope you find some relief with the gynecologist

Regarding the internal shaking, mine responded to a dietary supplement from Metagenics called Intesol (antispasmodic GI support). Its main ingredients are chamomile flower extract, peppermint leaf oil, lavender flower oil, and sodium copper chlorophyllin. I am on a regimen being treated with several nutritional supplements in a specified order for hPylori, leaky gut, and yeast, parasites, and bacteria. I was a mess and have made steady progress toward regaining health, weight, and am starting to add a little muscle. I really believe my internal shaking was from the spasms caused by the excess air. I was so full of air caused by the conditions mentioned above. I found GI specialists did not really understand the severity or cause of symptoms. I found it hard to function in daily life. All of this causes or adds to anxiety which only makes all GI symptoms worse. Mine all started with massive antibiotics for about three conditions in a row 2-3 years ago.

Something else I just thought of. The stuck in throat thing I felt when I was full of air. It helped to drink water and force the air down. Also when I took my daily allotment of Gas-X, I found activated charcoal tablets (found over the counter in drug stores or Walmart) to help get rid of gas. But the supplements are helping to get rid of the gas producers.

Hello
I know this is way past your post but I had endometriosis years ago
Nobody knew what was wrong until surgery to seee and it was endometriosis.

I have everything that you do including the lump in the throat, kinda like I'm being strangled especially when I lie down. The internal vibrations are the worst for me. I literally can barely function with them. You didn't mention insomniac which was my first clue that something was wrong. But it wasn't long before the lump in the throat and the internal tremors were contributing to my not sleeping. I've been to 6 Drs in 5 months for this and I'm suppose to see a neurologist next but they haven't even called to refer me yet. Might I add that I've lost faith in most Drs since all this started for me. Seems nowadays if they can't relate to what you are saying they just dismiss you as crazy. Truth be told this condition, whatever it is has made me not want to live anymore if I have to live with the internal vibrations. Mine are worst in my chest, stomach and basically my whole trunk. I'm also experiencing massive muscle spasms in my back and my arms and hands along with all this insanity. Has your sleep been affected? Hoping you are on the mend.