@cocodab This sounds like a complex problem, and it sounds like your shoulders and neck muscles are weak. It might not be a problem of compression, and instead nerves that are damaged or missing that in turn caused muscle wasting. I understand the fatigue from that, but what I've been through doesn't come close to your experience. The surgical scar tissue also creates tightness and the muscles can't move correctly, so that will add to the problem of weakness and exhaustion and there could be some nerve compression issues from that. MFR can help release the tightness of fascial scar tissue and it might be worth a try to see if it helps. You could have had nerve regeneration and have compression from scar tissue affecting that. My neck periodically gets tight around my surgical scar and I stretch it and release it. It sounds like you have had some regeneration, but not enough for a recovery. I'm not a doctor, and I can't diagnose that, and it is probably something that is being researched in regenerative medicine.

I have also run across a website for a practice of a few surgeons who graft nerves from other parts of the body. I have no experience with this and I don't know any patients who have seen them, but I found the website after another patient recommended a doctor and I looked him up. The website lists procedures they can do and surgery for the brachial plexus is listed as a grafting procedure. I had contacted a researcher at Mayo asking if they had a similar procedure because I know someone who is paralyzed at the level of the diaphragm, and the researcher at Mayo said they did not have a nerve grafting procedure yet for patients. These doctors say they are the only ones doing this in the country and they have a procedure for brachial plexus injuries. Here is the link. https://www.advancedreconstruction.com/brachial-plexus-injuries-program/

Have you tried physical therapy? After 10 years, perhaps no one thinks about it anymore, and a lot of doctors don't understand myofascial release. I know from my experience that MFR made it easier for my neurosurgeon to do his decompression surgery because the muscles in my neck were looser and would be easier to retract. I had asked my surgeon what I could do to make his job easier and he told me I could stretch the skin in my neck and told me where his incision would be. When he checked my neck, he said it was loose and that was because of the MFR I'd been doing for a few years, then after I was recovered enough post op, MFR helped get everything moving better again. I also wonder if there is any type on neurostimulation therapy that could trigger muscles and aid in muscle development and if MFR could open up the spaces and circulation for those nerves to exist. Your body might be compensating for nerves that are gone and haven't regenerated. The question then remains if the nerves have enough function to service those muscles.

@cocodab What an awful mistake for a surgeon to make. How do you not blow up with anger and resentment?