Hello, @lbern – just wanted to let you know that I moved your message with your update about the blood blisters in mouth due to folfirinox to this discussion you started previously. I can imagine that would feel concerning with the unknowns related to these blisters.
I would like to invite some members, like @hopeful33250@travelgirl@alpaca@ginpene05@nogginquest@beachgirl23, who have been treated by oncologists/hematologists and may have some perspective on your question about how to think or deal with the anxiety of a healthcare team "not knowing," but proceeding anyways with treatment. @lioness, who has been part of this discussion, may also have some thoughts for you.
@lbern, would it be a possibility for you in your region and with what is allowed with any insurance coverage you have, to get a second opinion on the blood blisters and potential progression? Are you feeling like your anxiety right now over this is manageable, or getting in the way of your daily functioning?