← Return to FOLFIRINOX chemo and blood blisters in mouth

lbern (@lbern)

FOLFIRINOX chemo and blood blisters in mouth

Cancer | Last Active: Feb 20, 2019 | Replies (11)

Comment receiving replies

Hello, @lbern – just wanted to let you know that I moved your message with your update about the blood blisters in mouth due to folfirinox to this discussion you started previously. I can imagine that would feel concerning with the unknowns related to these blisters.

I would like to invite some members, like @hopeful33250 @travelgirl @alpaca @ginpene05 @nogginquest @beachgirl23, who have been treated by oncologists/hematologists and may have some perspective on your question about how to think or deal with the anxiety of a healthcare team "not knowing," but proceeding anyways with treatment. @lioness, who has been part of this discussion, may also have some thoughts for you.

@lbern, would it be a possibility for you in your region and with what is allowed with any insurance coverage you have, to get a second opinion on the blood blisters and potential progression? Are you feeling like your anxiety right now over this is manageable, or getting in the way of your daily functioning?

Jump to this post

Replies to "Hello, @lbern - just wanted to let you know that I moved your message with your..."

thank you for reply. I had a second opinion a couple weeks ago with a pancreatic oncologist (mine is a general) that is within the same group of oncologists. This was before the mouth blood blisters became an issue. The second opinion doctor had thought in general I was getting too much dosage of the folfirinox, which I told my oncologist, who I think will be lowering my dosage. I've thought of switching to the pancreatic oncologist, but didn't feel comfortable with her. I actually would like to meet another pancreatic oncologist who is also in the same group as my oncologist, but fear it would appear like I'm doctor shopping, which I guess would be the case….not sure why I worry about this when it's my life, but it's hard to know who's right. I think I'm OK with my daily functioning, but know I'll be worrying after next treatment, waiting to see what side effects I'll get. Also wondering how often other people get a scan to evaluate if treatment is working or not.

  Request Appointment