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Liver biopsy

Digestive Health | Last Active: Oct 5, 2020 | Replies (97)

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@racing212

I do
Have non alcoholic cirrhosis, fluid build up

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Replies to "I do Have non alcoholic cirrhosis, fluid build up"

@racing212 I had symptoms for a number of years that were never attributed to cirrhosis -- declining platelet counts, shaky hands, retaining fluid in my feet, but then I had an HE (hepatic encephalopathy) episode and that made the doctor know there was something going on, but the other symptoms were still not connected to the problem. The HE made the doctor I went to at that time think my problem was neurological. and she sent me to a neurologist. Before that she actually called me on the phone and told me she thought I had Alzheimer's! The neurologist was the one who suggested it might be a liver problem, at which point a test for ammonia was done. By then I had changed PCPs. My ammonia was high so I was sent for a CT and that confirmed cirrhosis. It took about a year and a half after my first HE episode for the doctor to finally figure it out despite the other symptoms being typical signs of cirrhosis too. I was then told to see a hepatologist and went to one at Mass General. She told me that I probably had cirrhosis for 10 years! Apparently it takes a while to really present itself.

What I learned from that was if a diagnosis is not identified in a relatively reasonable amount of time, to head to Boston. I live in southern NH.
I hope you are seeing a good hepatologist and the doctor will guide you well in the best ways to prevent the cirrhosis from advancing further. Some people are able to go for a very long time following dietary restrictions and never need a transplant.
Again, please feel free to ask any questions you would like answered. Those of us who have been there are glad to share with people now going through it.
JK