1. < Neuropathy

Affects on smell?

Posted by jordanabrams30 @jordanabrams30, Feb 8, 2019

Hello

I recently was told I am borderline small fiber neuropathy and it’s expected at my 6 month follow up for it to be in full effect. I am curious though after experiencing numbness and tingling if anyone has had their sense of smell affected? Seem to be having this weird smell. I know small fiber is sensory, so could they sensor also be smell?

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Moderator
Lisa Lucier, Moderator | @lisalucier | Feb 11, 2019
In reply to @jordanabrams30 "Does anyone know the difference between a Mayo Clinic Dr and a Dr affiliated with the..." + (show)
@jordanabrams30

Does anyone know the difference between a Mayo Clinic Dr and a Dr affiliated with the Mayo Clinic? I am seeing a Dr who works out of Mayo Clinic, but doesn’t appear on their website. Do you have same access to diagnostic and treatments, knowledge etc? Thank you

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Here is a bit of information on the Mayo Clinic Care Network, to which I believe you are referring, @jordanabrams30 https://www.mayoclinic.org/about-mayo-clinic/care-network/members

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geegie | @geegie | Feb 12, 2019
In reply to @jordanabrams30 "@johnbishop thank you for the information and the support. I am definitely someone who will go..." + (show)
@jordanabrams30

@johnbishop thank you for the information and the support. I am definitely someone who will go full boat to find alternative treatments should conventional medicine not work. I know about the alternative vitamin regimen you have recommended to others, and I have also found a company here in San Diego that believes they have a cure for peripheral neuropathy that will go through a phase 3 trial this year. So much great research going on, I just hope to get clarity on why I am going this path if st all possible. Thank you for the support

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Could you please share the name of the company that is doing trials on SFN? Thanks so much, Rose

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1 reply
jordanabrams30 | @jordanabrams30 | Feb 12, 2019
In reply to @geegie "Could you please share the name of the company that is doing trials on SFN? Thanks..." + (show)
@geegie

Could you please share the name of the company that is doing trials on SFN? Thanks so much, Rose

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Winsantor

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