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margaret2 (@margaret2)

Gynecological neuroendocrine cancer

Neuroendocrine Tumors (NETs) | Last Active: May 6, 2019 | Replies (13)

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@hopeful33250

Hello @margaret2

After doing a little research I did find some information from the National Institute of Health, https://www.ncbi.nlm.nih.gov/pubmed/21621706. Of course it says it is rare, but I hope it may provide you with some more information.

Here is the website from the Carcinoid Foundation https://www.carcinoid.org/ As you can see, there is a list of doctors who specialize in NETs throughout the world. If your current doctor is not on that list I would encourage you to at least consult with one and then follow up with your local oncologist.

Just wondering: Is your breast cancer also a NET?

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Replies to "Hello @margaret2 After doing a little research I did find some information from the National Institute..."

Thank you for the information. Unfortunately the closest NET specialist is not close by. My financial situation does not allow a cash visit and boarding, transportation to, etc.