Hello @margaret2

After doing a little research I did find some information from the National Institute of Health, https://www.ncbi.nlm.nih.gov/pubmed/21621706. Of course it says it is rare, but I hope it may provide you with some more information.

Here is the website from the Carcinoid Foundation https://www.carcinoid.org/ As you can see, there is a list of doctors who specialize in NETs throughout the world. If your current doctor is not on that list I would encourage you to at least consult with one and then follow up with your local oncologist.

Just wondering: Is your breast cancer also a NET?