I live in Wisconsin and I've been seen at Mayo Clinic Rochester. I was there back in 2003 after my initial injury. My doctors referred me back there but I just got a letter last week telling me that they reviewed my records and don't think they have anything more to offer me. I am upset about that because I have multiple Tarlov cysts, also called perineural cysts in the sacral area and they are causing all the cauda equina symptoms. These cysts were present over 15 years ago and they were never brought to my attention or even considered to be the cause of my pain! All those years all the doctors just kept telling me that they didn't see any reason for my pain. Doctors, even the ones at Mayo in the Spine Center don't want to admit that they cause issues. I asked and Mayo has only done a couple surgeries on these cysts and aren't doing it anymore. It's a serious operation with potential for even more nerve damage so most doctors don't want to even attempt it. (avoiding a lawsuit). There are only 3 neurosurgeons in the U.S. that are known to specialize in this surgery. I am currently waiting for a surgery date with Dr. Feigenbaum from the Tarlov Cyst Institute at Pine Creek Medical Center in Dallas, TX. He has done more of these surgeries than anyone else and has has the best outcomes. It's either allow the cysts to continue to cause more nerve damage & other symptoms or risk the surgery.

Anyway, I have a doctor from a pain clinic, an integrative pain specialist, physical therapist, and my PCP that all communicate and work together on my treatment. The doctor from WI Integrative Pain Specialists is also an Anesthesiologist and specializes in connective tissue disorders. She is the one that prescribed the Oxytocin and Ketamine troches. I know if you Google Oxytocin and Ketamine for pain there is some awesome info. about it that comes up. Also, this doctor has people that fly in from all over the U.S. so if you can't find anyone near you please don't hesitate to ask me for her contact info.