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Infusions for widespread, intense nerve pain, probably due to MS

Chronic Pain | Last Active: Jun 11, 2023 | Replies (17)
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@elsa

Thanks very much for your response; it was enlightening.

I used to get steroid injections at L5-L6 but they stopped working. I do take 1800 mg/day of gabapentin. I also take CBD oil and low-dose naltrexone. I'm sure the gabapentin helps a little but I'm less sure about the efficacy of CBD oil and low-dose naltrexone. For 8+ years I also took morphine and hydrocodone but it's now been almost a year since I've taken any opiates.

I gather that lidocaine infusions are a pretty new pain therapy. Here's a 2017 article about them:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5323245/
I haven't tried massage but hope to do so. I've also tried dry needling which has been helpful for the neuromuscular part of my pain.

I wish you all the best with managing your pain.

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Rachel, Volunteer Mentor | @rwinney | Sep 27, 2019

Hello Elsa

I hope this post finds you receiving pain relief. I scrolled back through posts searching for anyone who has recd lidocaine infusions. You spoke of Low Dose Neltrexone as well.

I'm sreally suffering from wide spread Small Fiber Neuropathy and have received infusions for 3 and a half months to which I broke from this week. I needed a mental break. Dose up to 1000, getting metallic taste in mouth that lasts a couple days, partial face numbness. It scares me honestly. Needed to prove to myself if it's worth sitting there every week for over 5 hours and enduring side effects. Stopping is the only way to do so.

It certainly does not bring sufficient relief to my most problematic areas but overall does provide relief in various places. With or without, I still need 4 hydro each day plus Duloxetine, Lyrica and newly added plethora of supplements.

My PM Dr. recommended low dose naltrexone last Dec. I filled the script then never took it because I wasn't prepared to stop hydro due to my pain levels.

Heard great things about ketamine infusions but insurance won't cover and I can't afford out of pocket.

Meeting with my Neurologist Wed and I believe his next suggestions are IVIG (which confuses me bc I don't have an autoimmune disease) and plasmapherisis. Both difficult to receive insurance approval for.

If you are willing to share info or experiences on any of these mentioned topics I would be very grateful.

Also, anyone else out there is welcome to add to the conversation.

Thank you. Much appreciated!
Rachel

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