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PMR and the new Shingles vaccine
Polymyalgia Rheumatica (PMR) | Last Active: Dec 27, 2021 | Replies (67)Comment receiving replies
Your story sounds so much like mine. I’m at 9 and definitely feeling more of the strange pain and muscle cramping or spasms. I’m now upping to 9.5 a few days a week based on good info from this site, thanks to Peggy.
The fear for me is the GCA, which I did get, and it’s awful and frightening, head pain ( not a headache as we know it) vision issues, and swelling of veins around the temple. Had to go back to 15 and have been working my way back down. I’m trying ( like all of you) to be patient, determined to get down but not pressing it given the GCA. Thanks for the words of support.
Replies to "Your story sounds so much like mine. I’m at 9 and definitely feeling more of the..."
My mother had GCA. She was started on 60 mgs. of prednisone which is the typical starter dose. Were you ever given more than 15 when you contracted GCA? I think many of us with PMR are watchful of GCA symptoms, and I agree with you...frightening.
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@karinaph, I didn't realize you have GCA too. I can certainly relate to your symptoms of head pain, vision disturbance and swelling and pain at the temples. I always have trouble explaining to my doctors that it's not like a headache, it's head PAIN. That was a big problem before I finally got the GCA diagnosis. I had been at the ER five times before the docs diagnosed our "rare and dangerous" disease. I lost sight in my right eye before it was confirmed. 😥
I hope you continue to improve. Take care.
Warmest wishes,
Laurie