Connect
← Return to PMR and the new Shingles vaccine
Discussion
PMR and the new Shingles vaccine
Polymyalgia Rheumatica (PMR) | Last Active: Dec 27, 2021 | Replies (67)Comment receiving replies
I was diagnosed summer 2019. Fairly typical: started at 15 mgs. Okay dropping to 12.5 and then 10. Had a flare at 7.5 and now I'm trying to reduce to 9.5 from 10. Taking it slow and easy. I still have stiffness and some pain, and I now understand the objective is to get to the lowest point with prednisone where we have minimal discomfort. Sometimes hard to know what that is. I felt great at 15, and pretty good at 12.5. 10 is okay too, but I guess it's worth some pain to get lower?? I assumed around a two year duration when I was first diagnosed, but I now know that probably isn't the case.I'm thankful to be able to connect with others who have first-hand experience.
Replies to "I was diagnosed summer 2019. Fairly typical: started at 15 mgs. Okay dropping to 12.5 and..."
Connect
Your story sounds so much like mine. I’m at 9 and definitely feeling more of the strange pain and muscle cramping or spasms. I’m now upping to 9.5 a few days a week based on good info from this site, thanks to Peggy.
The fear for me is the GCA, which I did get, and it’s awful and frightening, head pain ( not a headache as we know it) vision issues, and swelling of veins around the temple. Had to go back to 15 and have been working my way back down. I’m trying ( like all of you) to be patient, determined to get down but not pressing it given the GCA. Thanks for the words of support.