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PMR and the new Shingles vaccine

Polymyalgia Rheumatica (PMR) | Last Active: Dec 27, 2021 | Replies (67)

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@jennyjay

Hello, I'm a retired British doctor in previous very good health, now 73. I received the two Shingrix shots (new non-live vaccine) last August 2019, spiked a high temperature that night but then OK. However, within 3 weeks I'd developed the symptoms and distribution of polymyalgia rheumatica - pectoral and especially pelvic girdles, big muscle groups pain and stiffness. Playing piano fine, but buttocks painful on the piano stool. It's all still there 7 months later and I'm hobbling around - though fortunately I can control it on ibuprofen, so can avoid steroids.
There was a rheumatology conference in 2019 in Ohio where academics were expressing their worries about this vaccine. It's not the vaccine itself, but a new adjuvent (added to initiate the immune response) from a tree in Chile that promotes a very intense reaction and gives highly efficient protection. But the downside is that sufferers who already have auto-immune conditions could be made worse, and also that the vaccine could actually spark new auto-immune conditions such as kariski and I are experiencing.

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Replies to "Hello, I'm a retired British doctor in previous very good health, now 73. I received the..."

Welcome to Connect @jennyjay. Thank you for sharing your experience and knowledge. It is really helpful to others sharing your symptoms. I have had two occurrences of PMR but it is currently in remission. I have debated about getting the new Shingrix shot but still undecided. I would also hate to get shingles 🙁

I developed Shingles in November 2018. A month later I was diagnosed with PMR. Which came first the chicken or the egg? Did I already have PMR which lowered my immune system so that the PMR emerged?