Thank you for the feedback. I'm currently spending most of every day researching doctors, making calls, trying to get appointments. So far, the only doctor who was knowledgeable about all of this was the geneticist who diagnosed me with EDS, Hypermobile Type. And she unfortunately doesn't see patients in practice. She said I'm not a good candidate for surgery because I have vascular issues, I bleed a lot. And I can't get steroid shots because I've also developed glaucoma, likely as a result of the Cervical TC's. Several doctors who've seen me either admitted that they knew nothing about TC's and EDS, or acted like they did but clearly didn't. The cardiologist I saw Thursday stated , oh most of these things are just anxiety. Unbelievable! Hadn't even looked at my MRI's and reports. So here I am, losing the ability to walk, and No one is treating me. It's insane. Again, if anyone on this site knows any sort of physician or PT in Southern California, I welcome the info. Otherwise, my search expands outward at a time when traveling is seriously not my greatest strength. And yes, I'm really scared too.

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