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Hearing Loss: Come introduce yourself and connect with others
Hearing Loss | Last Active: 4 days ago | Replies (1456)Comment receiving replies
Hi JK..... I have Takayahu's Arteritis, an autoimmune disease diagnosed 20 years ago. It can cause all kinds of problems over time. Did very well until 4 years ago. At that time I had to be treated for a lung infection caused by the Takayahus and had to go off the immune suppressants while on a combo of three antibiotics. After 4 months on these antibiotics I developed vertigo which I have 24 hours a day. A week later a significant loss of hearing which has gradually gotten worse. It's all about keeping the immune system suppressed enough do that inflammation does not cause all kinds of problems. When inflammation from the Takayahu's gets high, there is more hearing loss.
Replies to "Hi JK..... I have Takayahu's Arteritis, an autoimmune disease diagnosed 20 years ago. It can cause..."
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@judyca7 I had never heard of Takayasu's arteritis before so I googled. I’m sorry yours has degenerated, causing so many problems.
From what you say it sounds as if Takayasu's arteritis was not a direct cause of your hearing loss. Just what you didn’t need though, another complication. I’m surprised that the hearing loss has gotten worse, I thought when there was a specific cause like the antibiotics, that it didn’t usually get worse. I can’t imagine living with vertigo all the time either. I get light-headed many mornings and I hate it. I won’t drive until it goes away.
Hopefully you will not have much inflammation going forward. I don’t think the type of loss that I have is affected by inflammation, but I honestly don’t know!
We also stay home all of the time except to take walks. Everything is delivered.
We do family zooms with my son and daughter and their spouses but I end up frustrated. It is a bit better if I have the audio from my iPad stream directly into my HAs.
My HAs are Oticons and when I go to any classes the instructor is happy to wear my connect clip, an Oticon accessory that streams his/her voice directly into my HAs. Phonak has a similar device called the Roger pen. They really help a lot.
JK