← Return to Hearing Loss: Come introduce yourself and connect with others

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@contentandwell

@judyca7 your recent hearing loss sounds similar to mine. My hearing of sounds/volume hasn’t changed much but my speech recognition has degraded badly. One ear is now profound and the other severe.

Do you know what caused your hearing loss? I know it can happen with aging, but I believe that both cirrhosis and immunosuppressants can also cause that, but rarely. I think they exacerbated my loss which started in 2004. As my husband has aged his voice is less clear so it’s almost impossible for me to hear him the first time he says something.

Having hearing problems really is isolating. I had been going to water classes prior to the pandemic. It was a large friendly class but I was definitely an outsider because it was impossible for me to communicate over the sounds in the pool area and I have to pay a lot of attention to the class leader. This despite wearing my HAs into the pool - my head does not go under.

Phone calls with customer service people are impossible! Frequently they have strong accents and they always speak fast. My doctors are pretty accommodating.
JK

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Replies to "@judyca7 your recent hearing loss sounds similar to mine. My hearing of sounds/volume hasn’t changed much..."

Hi JK..... I have Takayahu's Arteritis, an autoimmune disease diagnosed 20 years ago. It can cause all kinds of problems over time. Did very well until 4 years ago. At that time I had to be treated for a lung infection caused by the Takayahus and had to go off the immune suppressants while on a combo of three antibiotics. After 4 months on these antibiotics I developed vertigo which I have 24 hours a day. A week later a significant loss of hearing which has gradually gotten worse. It's all about keeping the immune system suppressed enough do that inflammation does not cause all kinds of problems. When inflammation from the Takayahu's gets high, there is more hearing loss.

JK.... more: so it is a constant balancing act. My hearing loss is also severe in one ear and profound in the other, no clarity at all now. Also have to be careful not to catch a cold or other illness. So with Covid-19 I am really just staying home 98% of the time; relying on texting friends since phone conversation is very difficult.
You are right about dealing with business calls..... the accents are difficult to work with and even when I explain the situation and ask the person to speak slowly, it often doesn't happen.
I know I have over time become much more isolated and it is often lonely. But it is just too hard to try and be with friends and be an active participant in the conversation. Can't do Zoom meetings or Skype because can't hear anything on computer. Gave up yoga and pilates because could not hear instructor. And on and on. Problems that I think all of us deal with every day. That's why this group is so important as it provides support and a chance to be heard. Thanks for listening.