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Hearing Loss: Come introduce yourself and connect with others
Hearing Loss | Last Active: 22 hours ago | Replies (1534)Comment receiving replies
Hi! I am approaching my 40s, and have had hearing loss since I was 15. I am totally deaf in my right ear and have a significant hearing loss in my left ear. Over the years, it has gotten worse. I loss my hearing after having ear surgeries in both ears for my genetic disorder, NFII, or Neurofibromatosis Type II. I am hoping that one day I will not end up deaf.
Replies to "Hi! I am approaching my 40s, and have had hearing loss since I was 15. I..."
Hi @samt Welcome to Connect.
It must have been tough to lose a lot of your hearing during your teen years. My daughter started wearing hearing aids when she was 4 and was fine with them until she hit those teen years when kids can be cruel. For a long time she only wore one but when she went to college she resumed wearing two knowing she really needed to hear everything in class. We never knew what caused her loss but were told that’s true with a large percentage of people.
I hope that you don’t end up deaf too. That’s something that scares me also since my hearing seems to have deteriorated a lot. I didn’t start wearing HAs until I was in my 50s, 15 years ago. Are you wearing HAs or a CI?
JK
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I agree with Johnny3 about the value of a good support system. Check out the website of the Hearing Loss Association of America, HLAA, to see if there's a chapter near you. The Association of Late Deafened Adults (ALDA) is also a good resource. hearingloss.org and https://alda.org/.