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Hearing Loss: Come introduce yourself and connect with others
Hearing Loss | Last Active: 14 hours ago | Replies (1518)Comment receiving replies
JK, I have been at a stand still waiting for an appointment with a different ENT. I have left multiple messages for them to get me an appointment with no luck. Honestly I have little faith this will ever have a resolution in my lifetime. Considering donating my ears to science so they can figure it out for the next person! Hearing simply does not come and go like this. I feel that my story may be unique enough that it carries no weight with the traditional medical field. If it's not in a text book it can't exist right?
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@jfobes You are exactly right about most doctors. There are a few who realize that sometimes patients have some valuable personal knowledge. My orthopedic doctor is like that. I had a post-TKR problem and had some input from other post-transplant patients here on Connect, but my transplant team would not say it was a possibility. My orthopedic doctor actually said that sometimes patients experiences are valid even when science doesn’t support them!
I think many of us have experiences beyond the typical and doctors have to accept that.
JK