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@barbbie

My CRPS is in both feet, my left knee, and left butt. I just rediscovered a video for exercises for people over 55 or with Parkinson's and they are all done from a chair. I did it about six days ago. Even with that it was painful and some I couldn't do as I also have been dx with Stiff Person Syndrome and anything dealing with my right shoulder area can set off contractions body wide. I am going to try again today. I know it is important to keep moving whatever one can and to delight in the fact that some days are better than others. Thanks for responding. Just as a side note - I haven't been successful in finding PTs who know how to deal with my CRPS, myofascial pain, Stiff Person Syndrome, Degenerative Disc Disease, and small fiber neuropathy.

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Replies to "My CRPS is in both feet, my left knee, and left butt. I just rediscovered a..."

Last summer when I had surgery on my elbow because it kept dislocating by itself so they had to fix it and yes it was on my affected limb I had to do pt after surgery and there was on a couple of PT's from Mass general that know about RSD so I don't know where you're from but Mass General in Boston they might be able to help you and also my surgeon was out of Mass General and he got a service of nurses and PT's to come to my house if you live in Mass I can always get that information for you and see if you qualify for them to come to your house because one of them specialized would CRPS if I can help you in any way please let me know I understand what it's like