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Want to talk with others. Have you found relief from CRPS?

Chronic Pain | Last Active: Mar 27 3:06pm | Replies (221)

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@ardsu

Oh my, now I'm leery of pursuing Stiffman Syndrome. Thank you so much for your post; I would welcome hearing more of what you are going through. I'm new to this site and not sure how this works ... would like to continue hearing your experiences.

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Replies to "Oh my, now I'm leery of pursuing Stiffman Syndrome. Thank you so much for your post;..."

@ardsu

I started with contractures during a massage. It was only in my right shoulder, arm, and hand. Frequently I would end up with a claw hand. That occurred about six months after a fall and a head and neck injury. About 16 months later, I fell on ice walking to my car at work. I have no memory of the fall. One of my students saw me and ran to get the principal. We figure it took him about 5 minutes and me that same time to come to in a very cold icy place. I had a concussion, post concussion syndrome, and fractured the radial head in my right arm. I was out of work for 4 weeks. I was healed of my headaches when a visiting preacher came to our church. About 5 or 6 months later the contractures went body wide. My diaphragm will contract and these weird noises come out of my mouth. The muscle pain is incredible. Sometimes I get curled up. Even my toes get involved. They have lasted minutes to hours. They are exhausting. I left my teaching job on disability. I don know if Stiffmans can come from injuries. I also started myoclonic jerks. Thank goodness it usually is at bedtime. The whole body jerks. One time I counted 40 in an hour. Again exhausting. I take klonopin for that. What do you experience?