Hi I'm so sorry that u have had this for 20 years can I ask how u cope what do u do I'm desperate I've tried everything that I possibly could nothing works dr believe I've had it for about 10 11 years I've got diagnosed about 2.5 3 years but three out all these years I've tried everything acupuncture water therapy mirror Imaging the psych stop all different types of medications Blox surgeries and the only thing that seems to work and it sucks I have to say it is pain medication but due to the opiate epidemic I can't find a doctor to help I can't even leave my house getting in a car makes it so much worse I lost so much stuff from because of this I do not have a quality of life and I'm only 36 years old if you can suggest anything that helped you could you please let me know and again I'm very sorry you're dealing with this to