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Want to talk with others. Have you found relief from CRPS?Chronic Pain | Last Active: Jul 21, 2022 | Replies (198)
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Replies to "@rsnowflake Good morning I'm Lioness I use to live in the Pittsburg area before moving to..."
Hello and glad I found you. My 62 year old daughter is not just coping with pain but also nausea, slow motility, headaches and severe cramps in her abdomen. She had bariatric surgery one year ago. Her specialists point to the probability that it is vagus nerve syndrome but they have no suggestions other than that.
She is also excellent at research and we both have come up with the same list of tools that you have. They are mentioned all over the web. She has corsense to monitor her condition plus a blood pressure monitor. One person in this forum suggested checking (acronym) IFFGD and i highly recommend that Foundation. Please keep posting as perhaps we can all put this together for each other.
Thank you so much for your reply! It is a struggle every day. I also have a 15 year old daughter. She is amazing about all of this. My disorder unfortunately is like phantom pain. My brain sends pain to wherever it wants! So the pain I feel is very real and has even made me faint a few times, but there are not many doctors who treat this disorder. I got my medical marijuana card. I use it just to mellow me out , it doesn't take the pain away , but at least I can feel a little relief! Any time you would like to talk please contact me!!! People don't really get chronic pain so it's really good to talk to someone who really understands.