Connect
← Return to Want to talk with others. Have you found relief from CRPS?
Discussion
Want to talk with others. Have you found relief from CRPS?
Chronic Pain | Last Active: Jul 10 6:30am | Replies (235)Comment receiving replies
I was diagnosed a little over a year ago. It started after a broken ankle. It never really healed. Got purple and blue..really bizarre. Went back 2 orthopedic surgeon and he knew someone who studied crps for 2 years at Jefferson hospital in Philadelphia. I was very lucky 2 get diagnosed early, but it all went down hill after that. I got a nerve blocker on my leg. It worked great. Unfortunately it jumped quickly 2 my arm about a month after the nerve blocker. I didn't get that lucky that time....it got really bad and nothing worked. So I got a spinal implant. Sounds scary, but saved my hand!!! They put 2 leads in in case it jumped 2 my other arm...which it did. I use an ipod to control my pain day 2 day. Weather plays a big part of good and bad days, and so is stress. So try and find something just for u 2 do on those rough days..... really! I'm a 45 year young woman and I'm coloring to calm me down and I listen to music and tune out the pain. Would like to talk more I'm rsnowflake!
Replies to "I was diagnosed a little over a year ago. It started after a broken ankle. It..."
I have Chiari malformation and the nerve pain is hell! I can't sleep from the pain,and really need help blocking it out! How do you do that??
Good for you! Focusing on what I CAN do instead of what I can no longer do also. I line up “projects” that I can do and try to retain the great memories of athletics I enjoyed throughout my life…my daily life remains full. My projects have to stay out so I can move from sewing to wood projects, cleaning to menu planning, and now I’m learning to knit 🧶 on Utube. Mostly to keep my mind focused on something besides pain. Stretching, strengthening and meditation throughout the day
Hey there,
My son is 42 and approximately 10 years ago. He broke the cuboid bone in his foot and it would not heal. It turned into CRPS.
We went to Emery and Atlanta with no good outcome whatsoever. He finally is seeing a foot Doctor Who has done some laser treatments, which really do help to calm it down when he has flareups. Most doctors don’t know about this condition or even how to treat it. When my son first was diagnosed with it, he did not walk for three months and was 32 years old and with a family and a great job. It has been a difficult journey to say the least, but the foot doctor that he found who is familiar with it has helped him tremendously. Unfortunately, it never goes away, but I understand that Mayo Clinic does have doctors that specialize in this condition. Wishing you the very best and I am so sorry. No one realizes how bad it is until you or a family member have it.
Connect
@rsnowflake Good morning I'm Lioness I use to live in the Pittsburg area before moving to Calif. I have fibromyalgia O.A. and had a fracture back that gives me pain. I know about the weather issues even when it rains here I feel the change and we are in a rainy pattern now. I am 76 now but remember by 40,s it was tough that's when fibro started my mind was all over the place with that and menopause I was a wrecking ball wonder my family didn't desert me. Its good days and bad we all have but I have developed a tool box of stuff I do. Ice ,heat Tens unit for relaxation, Tappingsolutions.om if your not familiar with tapping. Tai,Chai, I started a chair exercise program here where I live Ginger turmeric tea for imflamation and it just taste goods. I wish back in those days I would have known about some of those tools . Sometimes when Dr,s don't have the answers we have to look elsewhere . I do a lot of research on any subject ,computer is great for this . WebMD.com ,https://www. nich.nih.gov I'm here if you want to talk This is a good group of people on here that care and try to help others