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DiscussionAny good results from taking Amikacin?? and what were side effects?
MAC & Bronchiectasis | Last Active: Aug 7, 2020 | Replies (58)Comment receiving replies
Replies to "@windwalker Hi Terri! Good question...AKA Hot tub lung!! I haven't been in a hot tub since..."
@gaylewroc I have a strong feeling that my mother had mac also. She had Alpha-1, which is a life-threatening disease along with emphysema. She passed away at the age of 58 in 1991. Back then, the medical professions didn't know much about Alpha-1 or mac. So she was never properly treated. She coughed non-stop and was not put on any kind of long term antibiotics, or very many short-term ones either. I do believe our bronchiectasis is very inheritable. pretty sure I got my crappy lungs from her. Did your mom and her sister live out a natural life span? Did your mom constantly get lung infections with her bronchiectasis?
@gaylewroc, Gosh girl, you've got the 1,2,3 punch - Lupus, fibro, and MAC. I feel for you, I know that is rough. Having no energy SUCKS!! I am right there with you on that. I am on prednisone right now to see if I can pump myself up. I was doing pretty good for awhile there. The pines are sending out lots of pollen right now, so I am hoping it is allergies that have me so tired and short-winded. I have quit and packed up my two favorite hobbies (painting and jewelry design) Seeing my supplies and not having energy to do them just made me feel worse. We are completing/building a one story apartment to move into (a major downsize) because I am overwhelmed trying to take care of our house. It is two story, and I know I must do at least 50 trips up & down the stairs per day.I have to sit and rest with each trip to catch my breath. I can't tell if it is good exercise, or if it is killing me! LOL! All I know is, I am ready for an easier life.