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Any good results from taking Amikacin?? and what were side effects?
MAC & Bronchiectasis | Last Active: Aug 7, 2020 | Replies (58)Comment receiving replies
@gaylewroc So, why are you convinced that it will return? Do you know length of time that usually passes before it returns? Is Amikacin an inhaled antibiotic? Did you still take the other Big 3 along with the Amikacin? Thanks for your help. (I have been on the Big 3 for almost 2 years now, and no clear sputum sample yet.)
@heathert How long did you take Amakicin? And, you just got nodules after 6 months, but no mycobacterium infection yet? Thank you for your help! 🙂
Replies to "@gaylewroc So, why are you convinced that it will return? Do you know length of time..."
Hi @beatitnow, I was on Amikacin Inhaled for a year. I have new nodules but apparently they can come and go. My recent Bronch sample came back clear of MAI. I think we are all learning incl the drs. Unfortunately nothing much is confirmed about MAI but we can help that with this site. I am not sure that there is a time that MAI re flares, everyone seems to be different, I know Quite a few at 2 years and I have been told there was a lady whos reflared at 15 years(very unusual). Hopefully we can all be successful at taking meds that do not do us much damage but keep the MAC at bay like @windwalker. There is alot in the pipeline, bring it on. If you take inhaled Amikacin let me know and I can help.
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@beatitnow , my infection has never been gone..I took the triple drug therapy for over 2 years. I am asking about Amikacin because that's the only drug I haven't tried. My scan as of almost 2 weeks ago shows disease progression, and active infection so I'm looking for further treatment.