← Return to Bilateral breast cancer w sentinel node removal: Lymphedema prevention
DiscussionBilateral breast cancer w sentinel node removal: Lymphedema prevention
Breast Cancer | Last Active: Oct 17, 2021 | Replies (24)Comment receiving replies
Replies to "I have had bilateral breast cancer with lymph nodes removed both sides. I have been trying..."
Lymphedema has happened to me on my right side, after breast cancer. I couldn’t understand why my doctors were just shrugging their shoulders like they don’t know why and we will watch and see. The lymphedema group has a lot of good information.
@sandyjr I moved your question about alternate methods for getting blood work done to the original discussion you started about this. It is a good discussion and I wanted to keep everyone in one place to talk about it.
I'll be following this discussion. I had invasive cancer in one breast and a Stage 0 - ALH in the other breast, so both breasts were removed 3 years ago. Lymph nodes were removed from both sides and I developed lymphedema in the breast that was ALH (not invasive cancer...figures, huh....) I avoid the lymphedema arm in blood draws and blood pressure but oddly have to do my blood draws in the arm where more lymph nodes were removed. My belief is that doctors don't really consider the possibility or realities of lymphedema, don't plan for it and don't follow a very good protocol. There are advocates for what you're asking. The most prominent person I have seen advocating for better concern and treatment is the actress Kathy Bates. Perhaps googling her organization and work will pull up some ideas or resources for this. Hugs.