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@sunsmile4u

I'm new to this site and just beginning testing. I've suffered for over twenty years with these symptoms. I have been to so many specialists with these symptoms and no one cared to look into this, until now. My new doctor is my hero. I feel so blessed having found him. I want to say something if anyone is just getting started like me, just getting tested for Pheochromocytoma. My lab in Southern California failed to give me instructions so my results are delayed and I have to repeat all my 24hour testing. I have taken the "proactive" patient approach the second time around and looked up all the things that would affect my results, there is a lot. It is sad that these professional individuals failed me as a patient and delayed my treatment. I'm excited when the day comes when I no longer soak out my clothes, my hair and be able to go out without feeling like I'm going to die because I'm so hot or have a heart attack.

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Replies to "I'm new to this site and just beginning testing. I've suffered for over twenty years with..."

Wishing you the best of luck! It seems that a lot of people have to find their own answers because so many doctors don’t know much about these tumors. I was one of the lucky ones!