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Paraganglioma / Carotid Body Tumor Question
Neuroendocrine Tumors (NETs) | Last Active: Jun 30 7:27am | Replies (115)Comment receiving replies
Hello everyone. I was incorrectly dx with bladder cancer and after second opinion am one year later learning that is not what I had, but a paraganglioma. Anyone else have this?
Replies to "Hello everyone. I was incorrectly dx with bladder cancer and after second opinion am one year..."
Hello @cootiesgirl1 , I had a paraganglioma on my skull base that was removed on Dec 2018 in Mayo Clinic. Where do you have it ? how are you doing ?
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My paraganglioma was in my neck so totally different symptoms. They can occur anywhere from eyes to thighs. My para was removed December 2016 at Mayo and I am doing great!