Shingrix and peripheral neuropathy

Unfortunately, we have much in common.
I will be involved with stem cell therapy in the next few weeks . Traditional therapies and pharmaceuticals are not an option.
At the advice of my “new” doctor, under no circumstances will I ever get the 2nd Shingles shot nor any other vaccine. I have conducted extensive research domestically and internationally and have had some improvement with pain and peripheral neuropathy .
I have made extensive dietary modifications, PT and
exercise changes. All my improvements have been
as a result of thinking outside the “box”.
I wish there were more positive results to date.

Hello @iampatella and welcome to Mayo Clinic Connect. I see you mentioned ricke and are reconsidering getting the vaccine.

What has changed your mind?

My year anniversary is next week and I can say I have “adjusted” as best possible to the discomfort. PN moderate in all my extremities with one foot often having no feeling at all especially first thing in the morning . This is most obvious when descending stairs. It has impacted my balance but not on level surfaces.
My sleep patterns are disrupted, I go to sleep feeling “tingling” sensations, experience the same while sleeping as it is reflected in my dreams and awake without relief, to continue each day. I would have to admit it’s 24/7.
I just ignore it now. Diet does impact the severity and I have been able to control my
aggressive “sleep scratching “ by eliminating all processed and GMO foods, and purchased beverages especially alcohol . No dining out at all. Only organic meat and produce. I only drink distilled water with lemon . My only “cheating” is with pure cocoa powder ( no sugar) which I can tolerate about a tablespoon in milk. The last pleasure afforded myself.
My greatest success as I refer to the feelings of “insects crawling under my skin” are attributed to intermittent fasting. 1k calories in a 4 hour window per day.
It works so that is my new normal.
Sounds horrible but it’s an improvement.
I believe that just about sums up my post vaccine experience.
I am beginning a stem cell protocol next week.
Now who’s not the optimist.

I would love to hear how the Stem Cell therapy works for you.

I have told of my experience several times over the last two years but now I see more interest in the topic. Two days after #1 Shingrix shot, I noticed difficulty sleeping at night and having creepy/crawly feelings beneath the skin of my calfs as well as achy/tingling in my legs. Once I am up, I am not bothered by these symptoms. I followed The crumbs, finally saw a Neurologist who did the EMG and said I have sensory neuropathy with numbness on the bottom of my feet/toes, cause unknown. I have been on Gabapentin, 600 mg at bedtime and Amitriptyline 25 mg in the evening for the last 18 months. I sleep fine with these. Then the Pandemic came along and I have not been interested in changing anything. I do not want to get #2 Shingrix shot and have not had any doctor able to convince me otherwise. I had no numbness or sensory issues until the first Shingrix. My balance is good, my gait is fine and Yoga helps my legs. I don’t know if anyone is keeping a tally of these occurrences. Shingrix and chickenpox are both nerve root in origin. At first, I wanted to see if anyone had found a treatment but now I realize there is not much I can do. I have no pain. I have no belief in this improving but I can live with it. Mary Ann

Can you take 2 different kinds of pills for the Neuropathy? I take 600 mg of Gabapentin & 60 mg. of Cymbalya but I am still in a level of 5 pain all the time except when I sleep. I know what your going through. The Cymbalta is a antidepressant & the dr. said it would help with the pain. I am better off when I keep moving. Hope you feel better.
God bless
Genie

Goodness, I have several medications for the pain caused by Peripheral Neuropathy. Methane is very helpful and I have gone off of it then had to add it again, when the pain came back too. It is nice to have options.

Methadone, not methane! sorry

@iampatella I was 81 when I received the new Shingrix shot.. I had a sore arm for a day or so .. All is well .. after seeing what getting Shingles does to one, there was no question in my mind to get it. I know of 1 instance of a person getting the shot and also getting a mild attack of Shingles as well later..

@iampatella, I am with @ken82 on getting the new Shingrix shot. At 77 and having seen my wife's twin sister getting Shingles on her face around her eye there is no question for me either. I got my first shot March 10th and my second one is scheduled in 8 weeks.