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Shingrix and peripheral neuropathy
Neuropathy | Last Active: Nov 3, 2024 | Replies (538)Comment receiving replies
Are there many people experiencing neuropathy after the Shingrix vaccine? I received the first shot in Dec 2019 and in January I started having terrible leg cramps. In Feb, I took the 2nd shot and my cramps turned to spasms and then the neuropathy started. I came to Mayo in May and was diagnosed with Benign Cramp Fasciculation. However, by July the horrible burning and electrical shock started and after many tests and biopsy, I was diagnosed with Small Fiber Neuropathy. I have said all along that this all came from the Shingrix vaccine as I had no symptoms before I took the first shot, and within 6 months I was diagnosed with severe Small Fiber Sensory Neuropathy. My Vaccine was given at Duke Medical center and they are also the ones who diagnosed the small fiber neuropathy but I can't get anyone to admit that this all came from the Shingrix vaccine. How do you go from no symptoms to severe neruopathy in a couple months. Everything that I read says that SFN is very slow progressing... Have there been any treatments identified, that you know of, that helps? Thanks for posting this. It helps to know that I'm not alone, although I would wish this on noone.
Replies to "Are there many people experiencing neuropathy after the Shingrix vaccine? I received the first shot in..."
I am shocked to read about so many negative reactions to the Shingrix vaccine..After enduring neuropathy for 3 years after my chemo treatments, my feet finally starting feeling normal again.. I decided it was time to get my shingles shot, because I had shingles 2 years ago, and WHAM..Within 2 days I was right back to the nightmare of the burning, irritating pains from neuropathy..I now will tell everyone that the pain from the shingles is short lived...The neuropathy is forever..DON'T GET THE SHOT...
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I have told of my experience several times over the last two years but now I see more interest in the topic. Two days after #1 Shingrix shot, I noticed difficulty sleeping at night and having creepy/crawly feelings beneath the skin of my calfs as well as achy/tingling in my legs. Once I am up, I am not bothered by these symptoms. I followed The crumbs, finally saw a Neurologist who did the EMG and said I have sensory neuropathy with numbness on the bottom of my feet/toes, cause unknown. I have been on Gabapentin, 600 mg at bedtime and Amitriptyline 25 mg in the evening for the last 18 months. I sleep fine with these. Then the Pandemic came along and I have not been interested in changing anything. I do not want to get #2 Shingrix shot and have not had any doctor able to convince me otherwise. I had no numbness or sensory issues until the first Shingrix. My balance is good, my gait is fine and Yoga helps my legs. I don’t know if anyone is keeping a tally of these occurrences. Shingrix and chickenpox are both nerve root in origin. At first, I wanted to see if anyone had found a treatment but now I realize there is not much I can do. I have no pain. I have no belief in this improving but I can live with it. Mary Ann