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Shingrix and peripheral neuropathy
Neuropathy | Last Active: Nov 3 12:52pm | Replies (538)Comment receiving replies
@helennicola
I agree with you Helen, we have to be our own researchers and advocates. The problem lies with the newbies to health care, which we were at the time. If I had been more savvy I would have done a TON of online research beforehand so my wife had all the facts up front. I think if we had done that she might not have started the chemo in the first place. She was hesitant at first anyway. It's just a shame how many people enter the healthcare world without any forewarning of what they are going in to. It's after we have been used and abused by the system that we become the advanced and wary souls that we are afterward. Too late, unfortunately. Hank
Replies to "@helennicola I agree with you Helen, we have to be our own researchers and advocates. The..."
Hank, in Linda’s case getting chemo post cancer is almost a no-brainer so I would not agree that you could/should have done more research or if you would have chosen differently. You are right though about the health industry today, it is sad that a few bad apples etc. I always try to be objective but find that I am a lot less trusting than I was 20 yrs. ago of anyone who stands to make money from me based on my decisions or actions!🙄🙃 Helen
Sad but
e. We must advocate for ourselves. Many doctors I know, like their patients to talk about info they've learned and to be involved in their own care. If they are any good, they are humble enough to admit they can't possibly know everything and want to learn more, no matter what the source. Many of my specialists have told me that I am out of the box and that my doctors need to think that way regarding my care.
Before I worked in healthcare over 20 years, and got to know and work for about 70 providers, I was too intimidated to speak up. It can still be hard but I understand they are humans just like me and I am usually at ease to discuss and negotiate with them. I 've even asked some of them if they would research specific information or look into it. This week I asked my Neurologist if she would consult with my Endocrinologist and she was happy to and did.
@helennicola @lorirenee1 @jesfactsmonjesfactsmon helennicola
I hope all of you are feeling much better than tolerable and have a blessed weekend.
Warmest wishes, Sunnyflower
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Hank @jesfactsmon you are right. Physicians do not always have answers but regardless we have to be our own advocate. Nurses go into the medical career to either help people or unfortunately for the monetary rewards. As the nurses learn they advance to their specialty. Just like in any business there are “bad” nurses as well as “good” nurses. Through my experiences I have seen a few that genuinely want to help. I believe for many it is just a job and do not think about anything but the monetary gains. Sad. Toni