Shingrix and peripheral neuropathy

@dont I love that you are suing. Good for you. Nothing will get your health back, but they deserve to be sued, period. You have gone through Hell. Please keep us all informed as to what happens. My best to you, LoriRenee1

Helen, I was just wondering the same thing -- it is certain to hold up the approval of covid vaccinations. Some people are thinking only of getting revenge - I wish they could see 'the big picture' -- that they are damping their own chances of getting a covid vaccination before they get covid -- and everyone else's too. Peggy

All serious adverse reactions to a vaccine should be reported and taken very seriously, especially by the pharmaceutical company who developed it; versus a coverup. My goal is that what has happened to me will not happen to anyone else. Post vaccination small fiber neuropathy should be added to the list of potential side effects for the Shingrix vaccine. I would like to employ any opportunity that could lead to this end. Additionally, appropriate research should be done which could lead to a potential screening blood test to identify people who would be at risk. I am personally not going to receive any other vaccination which lacks a minimum of a 5 year clinical history.

I am unfamiliar with the likelihood of getting neuropathy from a shingrix shot. I do know it is a common side effect of chemo for breast cancer. Before chemo, not one person affiliated with the hospital told my wife she had like a 25% chance of developing neuropathy from the chemo. Not even in the class beforehand to prepare the cancer patient for what to expect. After it did start to develop one of her doctors said "Oh, that will go way as soon as you stop the chemo", which of course was a lie. So if they will do it to get you to do chemo they will likely do it for anything. Just my 2 cents worth.

Hi Hank, Don, everyone who has gotten sick after following their dr.’s advice which was to help or prevent illness has a right to be very angry. I think part of the problem is that dr.’s don’t know everything and don’t have the time to thoroughly research the possible side effects. I have also had 3 negative health related unnecessary operations in my life which have caused me much stress but decided against legal action because the deck is usually stacked and would not ultimately change anything. I learned that we must do our own research and make our own decisions re: our health and should not rely totally on our dr.’s. For what it’s worth; I developed SFN after getting a flu shot and taking Tamiflu, is there a connection, who knows??? Helen

@jesfactsmon This link to a new article on Covid vaccine side effects starts to show the rigor the US system has before permitting vaccines.. I certainly will get a Covid shot as soon as possible... Just like 3 of our former Presidents..
https://www.marketwatch.com/story/what-side-effects-if-any-can-you-expect-from-a-covid-19-vaccine-shot-2020-12-04

@helennicola
I agree with you Helen, we have to be our own researchers and advocates. The problem lies with the newbies to health care, which we were at the time. If I had been more savvy I would have done a TON of online research beforehand so my wife had all the facts up front. I think if we had done that she might not have started the chemo in the first place. She was hesitant at first anyway. It's just a shame how many people enter the healthcare world without any forewarning of what they are going in to. It's after we have been used and abused by the system that we become the advanced and wary souls that we are afterward. Too late, unfortunately. Hank

Hank @jesfactsmon you are right. Physicians do not always have answers but regardless we have to be our own advocate. Nurses go into the medical career to either help people or unfortunately for the monetary rewards. As the nurses learn they advance to their specialty. Just like in any business there are “bad” nurses as well as “good” nurses. Through my experiences I have seen a few that genuinely want to help. I believe for many it is just a job and do not think about anything but the monetary gains. Sad. Toni

Hank, in Linda’s case getting chemo post cancer is almost a no-brainer so I would not agree that you could/should have done more research or if you would have chosen differently. You are right though about the health industry today, it is sad that a few bad apples etc. I always try to be objective but find that I am a lot less trusting than I was 20 yrs. ago of anyone who stands to make money from me based on my decisions or actions!🙄🙃 Helen

Sad but
e. We must advocate for ourselves. Many doctors I know, like their patients to talk about info they've learned and to be involved in their own care. If they are any good, they are humble enough to admit they can't possibly know everything and want to learn more, no matter what the source. Many of my specialists have told me that I am out of the box and that my doctors need to think that way regarding my care.

Before I worked in healthcare over 20 years, and got to know and work for about 70 providers, I was too intimidated to speak up. It can still be hard but I understand they are humans just like me and I am usually at ease to discuss and negotiate with them. I 've even asked some of them if they would research specific information or look into it. This week I asked my Neurologist if she would consult with my Endocrinologist and she was happy to and did.

@helennicola @lorirenee1 @jesfactsmonjesfactsmon helennicola

I hope all of you are feeling much better than tolerable and have a blessed weekend.
Warmest wishes, Sunnyflower