Shingrix and peripheral neuropathy
4 days after my 2nd Shingrix vaccination, I suddenly developed intense peripheral neuropathy in both feet...for the first time in my life...anyone else?
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Jen you're kidding!!! Wow, I haven't heard of that before. What a drag and a half! Hope you're having some victories these days. Many blessings, Sunny @jesfactsmon
So exciting; can't wait!!! @colleenyoung @don't
We did not discuss that and I’m pretty sure he was unaware of any.
Try the regime given you and give it time to work...no two paths are the same.
There are risks with almost any medication, vaccine, treatment, or procedure and while the risk may be "low," some people have adverse reactions that are serious. The CDC URL below has information on how to report an adverse reaction through VAERS website (https://vaers.hhs.gov/), or by calling 1-800-822-7967.
CDC
https://www.cdc.gov/vaccines/vpd/shingles/public/shingrix/index.html
It's so important to have an open dialogue with your provider and that they listen and explain their treatment recommendations to you. Then you and your provider can weigh the pros and cons of the treatment. I know this doesn't always happen.
Sometimes when I go to my provider, my provider seems inpatient and then I feel uncomfortable asking numerous questions. It's obvious they don't want to or feel they have the time to address all of my questions and concerns. Does anyone else feel this way?
@jeffrapp @sunnyflower @magnum52 @memomsloan and others. How would you approach providers to feel heard and get the answers to your questions?
I intend to. Thank you.
Thank you Colleen
@erikas
Erika, I would weigh how helpful he is in all different ways and if he is not just downright terrific in every way other than this "bedside manner" problem whereby he seems impatient to answer questions, I'd seek another doctor. My wife and I have the same pcp. We never waste his time, we understand he has other patients. But we do ask relevant and pertinent questions as they come up. When we have one we submit it to him through the patient portal online. He ALWAYS responds within 24 hours, often much less, with a thoughtful answer. He is very open to any suggestions we may have about our health issues and he often has good ideas of his own. If you decide to stay with your doctor, try to push him to answer ALL of you questions, that is part of his job. Best, Hank
Hi @magnum52
As to your statement that gabapentin works for very few people, what led you to that conclusion? I know several people here have said they do get some or a lot of benefit. However, many do not see any benefit and some have atrocious side effects. It seems like it's more of a mixed bag, some like it some don't. I'd like to see what the percentages are either way.
I see that you had posted back in August asking about DRG stimulators and wondering if that would be a good thing for you. Just wondering whether you have done any more research along those lines? There is a discussion about stimulators here on Connect, maybe you'd like to go to this link and post where you are currently at on this: https://connect.mayoclinic.org/discussion/peripheral-nerve-stimulators/
Sorry for your sfpn situation, it's truly an atrocious disease. Hope you'll keep sharing here on Connect. Best, Hank
Hi @dont, it's a shame that your diagnosis journey and experience is buried here on page 16 of a discussion about Shingrex. I encourage you to join these discussions:
- Living with Neuropathy - Welcome to the group https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
- Just Diagnosed with Small Fiber Neuropathy https://connect.mayoclinic.org/discussion/just-diagnosed-2/
There may be others that interest you too. Simply scroll through the recent discussion in the Neuropathy group https://connect.mayoclinic.org/group/neuropathy/