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Shingrix and peripheral neuropathy

Neuropathy | Last Active: Mar 12 1:36pm | Replies (530)
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@magnum52

Gabapentin works for very few people. It’s basically an anti-seizure drug. I assume you had a skin biopsy to confirm SFN, which is about 88% accurate. I have been diagnosed with idiopathic SFN. My guess is that your blood work for heavy metals and B6 will be normal. Doctors have very little in their bags to effectively treat SFN, so they just keep changing medication doses. Next they probably will try Lyrica, another anti-seizure drug. Cymbalta, a SNRI, May end up,being your best bet, but it not great either. My industry, the pharmaceutical industry, has not taken the problem very seriously. I wish you luck on this miserable journey, but don’t expect much help from physicians.

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Replies to "Gabapentin works for very few people. It’s basically an anti-seizure drug. I assume you had a..."
Hank | @jesfactsmon | Oct 7, 2020

Hi @magnum52
As to your statement that gabapentin works for very few people, what led you to that conclusion? I know several people here have said they do get some or a lot of benefit. However, many do not see any benefit and some have atrocious side effects. It seems like it's more of a mixed bag, some like it some don't. I'd like to see what the percentages are either way.

I see that you had posted back in August asking about DRG stimulators and wondering if that would be a good thing for you. Just wondering whether you have done any more research along those lines? There is a discussion about stimulators here on Connect, maybe you'd like to go to this link and post where you are currently at on this: https://connect.mayoclinic.org/discussion/peripheral-nerve-stimulators/

Sorry for your sfpn situation, it's truly an atrocious disease. Hope you'll keep sharing here on Connect. Best, Hank

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bustrbrwn22 | @bustrbrwn22 | Oct 7, 2020

@magnum52 I have tried all of those and they did not help depression, anxiety, or pain some with scared side effects. Can’t we just have what works prescribed instead of trying anything else BUT benzo’s or pain meds?

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