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Shingrix and peripheral neuropathy
Neuropathy | Last Active: Mar 12 1:36pm | Replies (530)Comment receiving replies
I have an update on my status today after consulting with the Neurologist. I do have Small Fiber Mediated Painful Neuropathy. Burning sensations from sensory nerves of my feet and legs sometimes going up the thighs to groin area. He agreed that it is probably from the second Shingrix injection. An autoimmune response. He wants additional blood tests in part to check for heavy metals & B6 and gave me a prescription for Gabapentin and for me to get off all supplements. Don
Replies to "I have an update on my status today after consulting with the Neurologist. I do have..."
Hi Don, wow, I 've never heard of Small Fiber "Mediated Painful" Neuropathy. Hope your lab tests come back as normal and that you experience relief from the Gabapentin. Keep us posted, Sunnyflower
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Gabapentin works for very few people. It’s basically an anti-seizure drug. I assume you had a skin biopsy to confirm SFN, which is about 88% accurate. I have been diagnosed with idiopathic SFN. My guess is that your blood work for heavy metals and B6 will be normal. Doctors have very little in their bags to effectively treat SFN, so they just keep changing medication doses. Next they probably will try Lyrica, another anti-seizure drug. Cymbalta, a SNRI, May end up,being your best bet, but it not great either. My industry, the pharmaceutical industry, has not taken the problem very seriously. I wish you luck on this miserable journey, but don’t expect much help from physicians.