@artscaping @maryflorida
I would add that Linda gets shooting pains regularly that start quick and over quick, which is a little different than you both are describing. They happen suddenly, without warning, and seem to happen somewhat randomly. It might happen in her chest, her side, a foot, a leg. Most often probably one or other of her feet, and of course that is the center of her PN. But it happens in other places too. Sometimes it will start in her foot and then go all the way up her body, not just localized. Usually lasts about 30 seconds to a minute or two at most. Sometimes will repeat soon after the first instance. No clue why it comes or where it goes. I know it happens at times I am not around as well as times when I am, and I would estimate that it happens once or twice a week in my presence.
The pain from these incidents is super intense, she sometimes says it's like someone is shoving a needle into her, very sharp,very intense, she yells out in pain, holding whatever place is affected, then it is over, thankfully. She says it seems electrical in nature. I suppose it's just another neuropathy symptom as I don't think it used to happen before she got PN. Hank
I guess what I am thinking is that there is a difference between an "episode" and a "flare". Episodes are something many of us pass through. They are worth mentioning and probably seeking some answers to the question "has anyone else had this?"
The fire in my abdomen was like that......I needed help to deal with the discomfort and I also needed answers as to why my neuropathy was just hanging out in my stomach. I never got any answers and so I stopped asking. Every once in awhile, a member will ask about the fire in their belly. So is "fire in the belly" something every newly diagnosed neuropathy patient will eventually encounter? If so....how do we know that it is coming and help spread the word about it so that others can say....."that is something I know about.....and it will not hang around."
What episodes or flares have you been dealing with recently?
May you be free of suffering (at least from that last flare) and the causes of suffering.
Chris