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Shingrix and peripheral neuropathy
Neuropathy | Last Active: Nov 3 12:52pm | Replies (538)Comment receiving replies
Hi @johnnyd
Sorry to hear about your neuropathy from the shingles shot, or Shingrix. I am not familiar with those shots, have not had one myself. It's amazing all the things I am learning that can cause neuropathy. It certainly makes me much more wary of just blithely going forward into medical procedures, tests, whatever they want to throw at you. Welcome to Mayo Connect. You will find a lot of info on this site and a lot of compassionate and very well informed PN sufferers here. Can I ask, did you get diagnosed with PN based upon any testing by your doctor? What kind of symptoms have you had? And it sounds like the Gabapentin and Lyrica have been helping? What made you switch from Gaba to Pregaba? Did Gabapentin stop working? Best, Hank
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Hi @jesfactsmon,
Thanks for the reply. I got an EMG and NCV test done by a great Neurologist who specializes in testing. The only thing he could tell me for sure is that I don't have large fiber neuropathy. By default, he said I more than likely had small fiber neuropathy based on the description of my symptoms. These include severe tingling, pins and needles and burning pain in my feet and lower legs. I have some tingling in my hands and arms, itching and pins and needles all over. The PA Neurologist I saw said they could do a nerve biopsy but said I didn't really need to so I didn't. I recently switched to Pregabalin just to try it because the Gaba is making me groggy and I wanted to see if the Lyrica would be any different. Unfortunately, I am having thyroid problems right now so not feeling great anyway so hard to evaluate if it's any different. From my own research I have read that the Lyrica is more completely utilized. I'm taking a pretty light dose (50mg) and when I can't stand it I'll supplement with 300mg Gaba. Honestly, I don't know what I'd do without the drugs. Love/hate relationship. I'm sure people can relate.