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Shingrix and peripheral neuropathy

Neuropathy | Last Active: Nov 3, 2024 | Replies (538)
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@memomsloan

To expand a bit, the neuropathy involves my feet and legs. It wakes me at night and it feels like creepy/crawly things under my skin. My legs ache and are painful. As soon as I get out of bed and on my feet, all the symptoms disappear. I am taking two medications now, Gabapentin and Amitriptyline, in order to help with the very disordered sleep. I was awakening every 90 minutes all night prior to the medications. The Gabapentin has reduced the creepy/crawly sensations under the skin of my calves. I will not get the 2nd shot of Shingrix. I also understand shot #1 and #2 are exactly alike and that the first shot gives 85% immunity. Is any place gathering this information to have it reported to the CDC?

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Replies to "To expand a bit, the neuropathy involves my feet and legs. It wakes me at night..."
John, Volunteer Mentor | @johnbishop | Nov 12, 2019

Hello @memomsloan, Welcome to Connect. I'm sorry to hear about your symptoms. I have not yet had the Shingrix shot but have been thinking about it. I already have small fiber peripheral neuropathy and do not want to deal with another condition like shingles. Your symptoms sound similar to Restless Leg Syndrome (RLS). There is another discussion you may want to join in on RLS.

> Groups > Sleep Health > Restless Leg Syndrome
-- https://connect.mayoclinic.org/discussion/restless-leg-syndrome-2a74e5/

Mayo Clinic - Restless Leg Syndrome - Symptoms & Causes
-- https://www.mayoclinic.org/diseases-conditions/restless-legs-syndrome/symptoms-causes/syc-20377168

Here's what the CDC has to say about the Shingrix Vaccine:

What Everyone Should Know about Shingles Vaccine (Shingrix)
-- https://www.cdc.gov/vaccines/vpd/shingles/public/shingrix/index.html
Complications of Shingles
-- https://www.cdc.gov/shingles/about/complications.html

You mentioned taking medications for the symptoms. Have you been diagnosed with neuropathy?

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crossette | @crossette | Jul 24, 2023

It is a shame that we have not been told about these cases of neuropathy after Shingrex injection! Everyone here that mentioned that should report it NOW even if it was a few years ago. Thanks.
If you experience side effects from Shingrix, you should report them to the Vaccine Adverse Event Reporting System (VAERS). You can do it yourself through the VAERS website, or by calling 1-800-822-7967.

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