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Just Diagnosed with Small Fiber Neuropathy
Neuropathy | Last Active: Jul 4, 2023 | Replies (235)Comment receiving replies
I have the same question, but my neurologist dismissed it saying insurance will not pay for it. I have an appointment with another neurologist at Stanford but not until December, In the meantime still pursuing this question with research but read somewhere if a genetic connection can be made you have a chance of getting it approved.
Replies to "I have the same question, but my neurologist dismissed it saying insurance will not pay for..."
After 3 years of denials, I was able to try 2 rounds of infusions - IVIG did begin to help me - then insurance denied it stating I showed no improvement (without me having a doctor appointment and without talking to me) - I am pretty sure that is grounds for a bad faith claim - on the part of the insurance company not acting in good faith - but that is a separate issue - yes - the IVIG did begin to help. Interestingly, I also have No to very low IgM.
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Hi @ruthofanne and @pmogen
IVIG is used for specific types of peripheral neuropathy, primarily chronic inflammatory demyelinating polyneuropathy (CIDP), which is a very rare condition.
CIDP causes more than just sensory problems (like pain). It also causes progressive weakness, lack of coordination, etc..
IVIG treatment is very expensive, and most insurance won't pay for it, unless you have the proper diagnosis.
There are also adverse reactions, as with any medicine.
Perhaps that is what your neurologist was trying to tell you.
Good luck!
Jeff