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Just Diagnosed with Small Fiber Neuropathy
Neuropathy | Last Active: Jul 4, 2023 | Replies (235)Comment receiving replies
Gabapentin/neurontin didn't help me, and my wife says that it affected my thinking. I have 5 siblings, and Gabapentin worked for all of them.
By this point in my pn journey, I am willing to try any medication my doctors prescribe. I've had idiopathic sfpn and autonomic polyneuropathy since 2012, and I've tried a lot of medications. Some just did nothing, some didn't have any effect on my neuropathy, and had unacceptable side effects. Some reduced my pain for up to six months, then stopped working, and had no side effects. I have a team of great doctors whom I trust to give me any appropriate treatment, whether it's medication, or stimulator or surgery. After working with them for up to 15 years, I know that they have my best interest in mind.
I wish that one of the medications I've tried would treat the non-stop pain. Neuropathy is one of the diseases that has no cure, but there are many things that treat symptoms. I wish you the best in finding a treatment that works for you, and that you're comfortable with.
Jim
Replies to "@strikeanerve Gabapentin/neurontin didn't help me, and my wife says that it affected my thinking. I have..."
You might look into Medical Rebuilder. I've had this device since being diagnosed 5 years ago and use it regularly. I think it has helped weakness and pain. I've also visited with others who have been helped. It's not magic, of course, and somewhat expensive - about $800 and not covered by insurance.
I have not tried it but I have read that low dose naltrexone has worked for many people. If you haven't yet tried it, ask your doctor. Good luck.
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Hi Jim, I just read about Belbuca, supposedly a new 12 hr. opioid? It is a thin square strip which you place in your cheek to dissolve. I don’t have any idea about it’s effectiveness. Helen