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Just Diagnosed with Small Fiber Neuropathy

Neuropathy | Last Active: Jul 4, 2023 | Replies (235)

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@jesfactsmon

@jakedduck1 @lorirenee1
I don't remember what he said about the hallucinations and I doubt Linda does as she has not mentioned it ever. Her hallucinations were not scary but were very real seeming. She described them as cartoony bubble men floating around her and making faces and doing various antics. She said had they been scary critters, since they were so real, pretty much anyone would probably stop the gabapentin for that alone. She found it a strange phenomenon. I'm not sure I ever heard before that if you keep taking it long enough some of the symptoms subside, and I'm not really sure we knew all that much about the drug while she was taking it. But it was over two years ago now and ancient history in our book.

Best to you both, Hank

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Replies to "@jakedduck1 @lorirenee1 I don't remember what he said about the hallucinations and I doubt Linda does..."

@jesfactsmon

Chemo-Induced Peripheral Neuropathy: Quality of Life and Treatment Planning
The Foundation for Peripheral Neuropathy is bringing together a panel of experts for this webinar to discuss CIPN and its impact on patients and their physical and mental health.
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Time: 12:00 PM – 1:00 PM ET (Please note that this lecture starts at 11 a.m. Central, 10 a.m. Mountain and 9 a.m. Pacific)
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Thomas Smith, MD FACP FASCO FAAHPM
Professor of Oncology,
Sidney Kimmel Comprehensive Cancer Center, Johns Hopkins University

Stefanie Geisler, MD
Assistant Professor, Neurology,
Washington University, St Louis, MO

Krista Nelson, LCSW, OSW-C, Oncology Social Worker
Providence Health Systems

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