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Just Diagnosed with Small Fiber Neuropathy

Neuropathy | Last Active: Jul 4, 2023 | Replies (235)

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@jakedduck1

@jesfactsmon
Good morning or perhaps afternoon,
Hi Hank,
I have been taking all sorts of seizure medications for over 50 years and I used to take Neurontin the brand name of Gabapentin but it didn’t help my seizures or my neuropathy so I discontinued it.
Most seizure medication side effects resolve within weeks to several months. i’m surprised her symptoms didn’t improve within two months. hallucinations are very rare with gabapentin. Was your wife taking other medication/s at the time? Another reason for side effects is when the medication is initially started to quickly and/or at to high a dose and the same thing with any incremental increases.
I'm not surprised about the dizziness, balance,
brain fog or memory issues. Those are all very common side effects from seizure medications. However they do usually resolve at least to some degree after a period of time. The hallucinations however really perplex me. Did her doctor by chance have anything to say about the hallucinations?
Take care Hank & Mrs Hank,
Jake

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Replies to "@jesfactsmon Good morning or perhaps afternoon, Hi Hank, I have been taking all sorts of seizure..."

@jakedduck1 @lorirenee1
I don't remember what he said about the hallucinations and I doubt Linda does as she has not mentioned it ever. Her hallucinations were not scary but were very real seeming. She described them as cartoony bubble men floating around her and making faces and doing various antics. She said had they been scary critters, since they were so real, pretty much anyone would probably stop the gabapentin for that alone. She found it a strange phenomenon. I'm not sure I ever heard before that if you keep taking it long enough some of the symptoms subside, and I'm not really sure we knew all that much about the drug while she was taking it. But it was over two years ago now and ancient history in our book.

Best to you both, Hank

Jake, I agree, the dizziness, memory problems, brain fog, balance issues went away after a few weeks or so, and I also had decreased my initial dosage from 3xday to 1x night. Luckily, the gabapentin works for me and I have only increased my dosage 2 x in 3 years now taking 300 mg. Helen