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DiscussionJust Diagnosed with Small Fiber Neuropathy
Neuropathy | Last Active: Aug 12 10:26am | Replies (236)Comment receiving replies
Replies to "I landed on my left. Ruptured my spleen and fractured ribs on left. I’m recovered but..."
@swartzki What I can imagine from your description is that you could have injured your spine in the fall. Did your head hit the ground? You might have landed on your hips or ribs, and whiplashed your head to the side which would put a force on your neck and unevenly, so one side took a bigger hit. For comparison, my experience with a whiplash was that my car was hit from behind while I had my head turned to the left. This caused me to have more symptoms on the left side, and when that began as a disc herniation and bone spurs, it started on the left central side in the spinal canal and started pushing into my spinal cord. I am a Mayo surgical patient and had successful surgery to correct my old spine injury. Several things you mentioned could also be attributed to a spine injury... the TMJ, urinary issues can be from spinal cord damage or compression, vision problems, muscle loss from nerve compression, numbness. I don't know where you have a pinched nerve on the left, but that would be useful information. A spine problem can sneak up on you even years down the road as it did for me. A spine injury can cause small cracks in the outer fibrous layer of spinal discs, and later, these can open up as a disc dries out. It's a normal aging process that discs dry out and compress in time, but that happens sooner for some and later for others, and then bone spurs and arthritis can form that further compresses nerves.
If you haven't done so, I would encourage you to consult a spine surgeon, and have MRI imaging to look for damage, compressed nerves or spinal cord and spinal alignment. Perhaps there is MRI imaging from your accident, and you may be able to get copies. Some of these symptoms may not be from small fiber neuropathy, and it's easy to dismiss them because you have a diagnosis, but there may be overlapping symptoms from different problems, and a spine injury can easily be missed. If a spine injury is at fault, there may be a fix that can help resolve some of that. With spine injuries, when a disc has ruptured, it creates inflammation, and the body tries to compensate by growing and remodeling the bone to try to stabilize the spine. Over time that process creates a lot of disability by compressing nerves and muscle loss and atrophy is caused when the nerves can't communicate properly with the muscles they serve. That happened to me so slowly that I didn't know until my physical therapist pointed it out. I had lost about 50% of the muscle mass in my arms and shoulders because I had spinal cord compression. I also had issues with urinary retention which is the earlier symptom that can be caused by spinal cord compression and that advances toward incontinence which can become permanent. These are red flags for surgical intervention.
I did have very successful spine surgery that corrected the issues I had. I got a lot of my muscle back that had atrophied. Spine injuries can be very fatiguing, and so is the recovery, and it's baby steps. A physical therapist might be able to help you to and try to assess if you have proper spinal alignment. It may be worth investigating further in case there is treatment that can help. You can also look at our myofascial release discussion for information. My physical therapist does this and it helps me a lot. It can also help break up surgical scar tissue that affects and restricts proper movement. https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/